August is the month where Isabella will officially have a brain injury longer than she hasn’t had one. I can honestly say that I have dreaded “this day” since her Acquired Brain Injury (ABI). I knew that being 4.5 years old at the time Isabella got sick, “this day” would approach sooner rather than later.
As the day gets closer, I am coming to the realization that certain things will always be. Isabella’s debilitating anxiety and aggression isn’t going to go away. It will always be there sometimes much worse than other times. This is how Isabella will be post ABI and it’s not going to change much. My hope is that by continuing to work with her, maybe just maybe it will help.
As the day gets closer, I am coming to the realization that her dreams and goals will be altered. It is heartbreaking to think that her ABI has robbed her of these things. My hope is that Isabella will find happiness on an alternative path. Isabella can still aspire to be whoever she wants to be, however, her life will be altered based on her abilities.
Last week, after a horrible day, we snuggled in our Hyperbaric Oxygen Chamber. While in there, Isabella taught me how to make shadow puppets and we had so much fun. What I realized is that the dreaded day doesn’t change anything. Isabella’s brain injury doesn’t define her. It is a part of her. This beautiful girl whom I love more than life itself is amazing. Every day is not great and that is ok because every day that I am given with her is a blessing.
“Accept what is, let go of what was and have faith in what will be” Sonia Ricotti
Guest Blogger, Kristin Olliney-Apruzzese, is the mother of 9-year-old Isabella, who suffered sudden acute encephalitis when she was just 4. Kristin’s bi-monthly blog, Mommy of a Miracle, talks about the trials and joys of raising a brain injury survivor.
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