Moms: In loving memory of Zakary, Odie, Raina and Gary – Mommy of a Miracle

As another Mother’s Day passes, we remember the moms that we have lost and we cherish the ones that we have here today.  Mother’s Day is one day a year and yet the moms that I know deserve to be celebrated every day.  As mothers we all dream of how life for our children will be.  We dream about them playing sports, having friends, graduating, going to college and eventually having a family of their own.  A brain injury is not something that ever enters our mind UNTIL it actually happens.  Then life comes to a screeching halt.

Parents of children with brain injuries are some of the most amazing moms I know.  In addition to having the typical mom role, we are also therapists, advocates, educators, nurses, doctors, pharmacist etc.  Our days are jammed packed with trying to help our child move forward with recovery in addition to help with ADLs, behavior support plans, medication etc.  Our nights are often filled with worries about what the future may hold or spent on the internet looking for the next treatment that could help our child progress.

The majority of the moms I know who have a child with a brain injury were told very similar things.  We were told our child wouldn’t make it through the night, would be vegetative, wouldn’t walk or talk etc.  Some of our children defied those odds to varying degrees.  Brain injuries are so complex that at any time things can change.  For several moms in my support group, the unthinkable happened.  Their child survived the initial injury only to gain their angel wings months and even years afterwards.  These moms are the ones that I admire the most.  Each was faced with the decision that no mother should ever have to be faced with.  Each one chose to keep their child comfortable and to not prolong the pain.  The bravery, strength and love for their child is admirable.  Parents are not supposed to bury their children and yet just recently five have had to do just that.  I hope that if I were to ever find myself in their shoes that I would have the courage to do as they have.

As another mom prepares to say good bye her child, it is yet another reminder just how precious life is. Tomorrow is not a guarantee for any of us.   In an instant it can all change and never be the same.

“The women whom I love and admire for their strength and grace did not get that way because **** worked out.  They got that way because **** went wrong, and they handled it.  They handled it in a thousand different ways on a thousand different days but they handled it.  Those women are my superheroes.” Elizabeth Gilbert

SAMSUNG CAMERA PICTURESGuest Blogger, Kristin Olliney-Apruzzese, is the mother of 8-year-old Isabella, who suffered sudden acute encephalitis when she was just 4. Kristin’s bi-monthly blog, Mommy of a Miracle, talks about the trials and joys of raising a brain injury survivor.

Legal Statement: The information contained in this blog does not reflect the specific views of BIA-MA. This blog is published for informational purposes only. BIA-MA is not providing medical, legal or other professional advice with its publication. 


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